Percepção de qualidade de vida em pacientes com anemia falciforme.

Abstract

Sickle cell anemia (SCA) is one of the oldest hereditary diseases of mankind, characterized by sickle formation of red blood cells. In Brazil there is an average prevalence of 2% of sickle cell trait in the general population. Thus, understanding the perception of the falcemic person about his perception of his Quality of Life makes it possible to recognize the factors that influence this process, and can help to create subsidies that support the interventions of health professionals. In this sense, the objective of the present study was to measure the Quality of Life of Adult PA patients treated at a Reference Blood Center in the state of Tocantins. As a methodology, it is a descriptive, qualitative and observational cross-sectional study. Patients with PA suffer life-long painful crises, causing inability to perform their daily activities, resulting in impairment in personal and social life, which can lead the patient to social isolation and difficulties living together; causing damage to the formation, career, relationships in general of patients with PA. It is necessary to evaluate the level of qualification of the professionals who work with these patients in order to raise the level of preparation and capacity for assistance of patients with PA in the Public Health Service. In addition, inserting the family in the context of coping, treatment and the like, is a determining factor for improving the process of coping with the disease.